No one should face ALS alone.
ALStogether is a free online community where people living with ALS and their caregivers ask questions, share what works, and find friends who get it.
🎉 Introducing #meet-and-connect-live! Put faces to names in friendly video chats. Vote on a time for our first one in November.
Just shared my newest blog post, typed with my eye-gaze computer. Hope it helps someone having a hard week. 💛
Has anyone tried the new fever-induction trial? Saw it in #als-research-nerding-out.
Sara (cALS) reacted 🙏
Matt (pALS) joined #intros
Remembering Brooke Eby
“I didn’t choose ALS, but I did choose to get loud, and be irreverent about it.”
Brooke founded ALStogether to give people a place to belong. Her honesty, humor and determination changed how countless people understand ALS, and this community carries her work forward.
In the community in three steps
ALStogether runs on Slack, a free chat app. If you've never used it, our guide walks you through every step.
Accept your invite
Use our invite link and sign up with your email. It takes about two minutes.
Get the Slack app
Free on computer, phone or tablet. Simplified layout mode is available in the desktop app.
Say hello
Start in #welcome-to-alstogether and #intros, then join channels for your questions, your variant, or just to vent.
A home for everyone ALS touches
One community where everyone helps everyone. People living with ALS, caregivers and loved ones each bring their own experience, from day-to-day life with equipment to navigating insurance.
People living with ALS
Swap tips on equipment and daily life, share what’s working, and connect privately with others living with ALS.
Caregivers
Ask questions anytime, learn from other caregivers who’ve been there, and have a private space just for you.
Family & friends
Learn from others how to show up for someone with ALS, and how to take care of yourself too.
Answers at the speed of ALS
ALS moves fast, and help is scattered across groups and websites. ALStogether brings everyone into one place, organized by topic, so you can find what you need right away.
Private channels, like the pALS and cALS support groups, are just for people living it. Ask an admin to join.
Has anyone gotten a rain canopy or umbrella for their power chair? They’re so expensive I’m nervous to buy one without a recommendation.
We had our power wheelchair fitting today. I brought a printed list of questions and it really helped. Sharing it here!
For anyone deciding between a ceiling lift and a portable patient lift: we tried both. Happy to answer questions about what worked in our house.
You’ll find your people here
Navigating ALS can feel overwhelming, but connecting with others who truly understand can be very empowering by providing support, sharing victories or losses, and finding practical tips to make daily life easier.Michael WilsonPerson living with ALS
Placeholder: a member’s quote about finding support the week of diagnosis.Member nameRole
Placeholder: a quote about getting help from the community.Member nameRole
Placeholder: a quote about friendship and humor in the community.Member nameRole
Placeholder: a quote about a practical tip from the community that made daily life easier.Member nameRole
Placeholder: a quote about sharing a victory with people who get it.Member nameRole
Placeholder: a quote about not feeling alone.Member nameRole
Photo coming soonPlaceholder: a quote about what ALStogether means to a family.Member nameRole
Michael Wilson’s quote and photo are real. The other photos are ALStogether community members from alstogether.org, and their quotes are placeholders. Collect real ones, with permission, from members.
One thing at a time with simplified layout
Many people with ALS use eye tracking, a head mouse or other assistive technology. Slack’s simplified layout mode for the desktop app shows one section of Slack at a time, with fewer distractions.
- A landing page with Home, DMs, Activity and More
- One navigation bar that shows where you are
- Numbered badges for anything unread
Illustration of the simplified layout landing page. Try selecting More.
Backed by ALS Network
ALStogether is now part of ALS Network. That means faster connections to care services, clinics, equipment and research, right from your community.
Read about the integration →Your community is waiting
Free for people with a confirmed ALS diagnosis and the people in their lives.